Santa Clara, CA
Bay Club Santa Clara
Road To Discovery
Thu, June 25, 2015 6:30PM to 9:00PM (Pacific)
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Join us in welcoming the Road to Discovery to Notre Dame. 

Featuring:
Greg Crawford, Dean of the College of Science 
Cindy Parseghian, President of the Ara Parseghian Medical Research Foundation
Matt Wilsey, President of the Grace Wisley Foundation


Please join us to hear from Greg Crawford and special guest Cindy Parseghian who will discuss Notre Dame’s role in the fight against Niemann-Pick Type C (NPC) disease.

Since 2010, Greg Crawford has dedicated his summers to cycling across the country to raising awareness and funds for research to find treatments and a cure for NPC disease—A rare and fatal cholesterol-storage disorder that took the lives of three grandchildren of legendary Notre Dame football coach Ara Parseghian.

We will also hear from Matt Wilsey to learn about his family’s fight to find a cure for the rare disease NGLY1- an extremely rare genetic disorder  that inhibits his daughter Grace’s ability to glycosylate proteins. 

Greg is embarking upon his final cross-country bike ride from May 26-June 26 to bring awareness and raise $1 million for NPC and additional rare disease research including NGLY1 at Notre Dame’s Boler-Parseghian Center for Rare and Neglected Diseases. Greg will stop in the Silicon Valley area on June 25 and please join us for the celebration.

Thursday, June 25
6:30-9:00 p.m.
Bay Club Santa Clara
3250 Central Expressway
Santa Clara, CA 95051

Complimentary hors d’oeuvres and drinks.
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